Clinical Trial

NEW CLINICAL TRIAL FOR LBSL

We want YOU to participate in our new
Clinical Research Study!

JHU IRB Use:
Study number:IRB00150619
Approved December 20, 2017

Overview:

We would like to assess your clinical symptoms in order
to expand our knowledge of this disorder in the
medical community.

We hope this research can clarify the common and
clinically important symptoms that should be targeted
for new treatments.

Eligibility:

1. Do you or your child have a diagnosis of LBSL?
2. Is this diagnosis based on genetic testing?
3. Do you have regular access to the Internet?

If yes, then you may eligible to participate in this study!

Contact:

Principal Investigator
D r. S Ali Fatemi
443-923-2769 or 443-923-1820
kaufmanmi@kennedykrieger.org
smithame@kennedykrieger.org

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There is no monetary compensation from this study.
There are no direct benefits to you from being in this study. If
you take part in this study, you may help others in the future.