NEW CLINICAL TRIAL FOR LBSL
We want YOU to participate in our new
Clinical Research Study!
JHU IRB Use:
Approved December 20, 2017
We would like to assess your clinical symptoms in order
to expand our knowledge of this disorder in the
We hope this research can clarify the common and
clinically important symptoms that should be targeted
for new treatments.
1. Do you or your child have a diagnosis of LBSL?
2. Is this diagnosis based on genetic testing?
3. Do you have regular access to the Internet?
If yes, then you may eligible to participate in this study!
There is no monetary compensation from this study.
There are no direct benefits to you from being in this study. If
you take part in this study, you may help others in the future.