Upcoming Events

Fairlington 5K & Silent Auction

Each year in April, Ellie’s friends and neighbors host a 5K race and silent auction to support the foundation’s mission of finding a cure for LBSL. The “Fairlington 5K” attracts hundreds of runners from around Virginia, Washington D.C., Maryland and beyond. For more information on this year’s race, please click here. If you would like to donate an item to the silent auction or become a sponsor for the race, please contact us at ACureforEllie@gmail.com.

 


2018 First-ever LBSL Conference

“A Cure for Ellie” and Kennedy Krieger are partnering to host the first-ever LBSL Conference April 18 and 19, 2018 in Baltimore, Maryland. Topics include: The different faces of LBSL; Genetics of LBSL simplified; General management of LBSL and mitochondrial diseases; Antioxidant therapy of LBSL; Nutritional aspects; Social challenges of having a rare disease; Physical and occupational therapy; Basics of clinical trials; Update on pre-clinical research; Update on clinical research in LBSL.

All are welcome. Registration opens soon. Check this website for details.