Welcome!
A Cure for Ellie is a non-profit organization named after Ellie McGinn, a young girl in Arlington, Virginia who was diagnosed with LBSL in 2011 at age three. Ellie and her parents have made it their mission to spread awareness about the disease; offer support to other families; and drive research that they pray will lead to a cure.
Other Awesome People
LBSL patients come in all shapes and sizes
Ongoing Research
Research into a cure for LBSL is underway at the Kennedy Krieger Institute.
Find a Cure
Even small donations can make a big difference. With help from people like you, we have raised $300,000 to kick start research.
In the News
LBSL was recently featured on the “Today Show.”
