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PATIENT-FUNDED RESEARCH FOR RARE BRAIN DISORDER AT KENNEDY KRIEGER INSTITUTE REACHES $1.6 MILLION
11-Year Old Disease Fighter Joins Global GivingTuesday With a Goal to Cure Rare Brain Disease
The Ellie Challenge: Global Effort to Rename Terrible Multi-Syllable Children’s Disease
Can You Say “Leukoencephalopathy with Brainstem and Spinal Cord Involvement and Lactate Elevation” Three Times Fast? Neither Can the Eight Year-Old Girl Who Wants to Rename Her Rare Brain Disease A Cure for Ellie Foundation Launches “The Ellie Challenge”
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