Started by Ellie’s neighbors in 2013, the “Fairlington 5K” normally attracts over 700 hundred runners from around Virginia, Washington D.C., Maryland and beyond raising over $100,000 for Ellie’s cure. In 2020, because of COVID-19, the event went virtual and was rebranded as the “ProjectAwesome5K.” Runners from across the globe took part and an incredible $34,000 was raised for research. Thanks to all who made the race such a huge success.
#GivingTuesday is a global philanthropic movement that raises tens of thousands of dollars for the cure LBSL effort each year. This special day of giving takes place the Tuesday after Thanksgiving and after “Cyber Monday.” On this day only, donations to “A Cure for Ellie” made through Facebook are matched. Our 2020 #GivingTuesday campaign raised an incredible $450,000 for LBSL research! This year’s day of giving takes place December 1 and our goal is to raise $477,000 – which keeps the laboratory at Kennedy Krieger going until at least July 2021.
Click here to join the campaign.
LBSL Conference: Connection, Collaboration, Cures
Every two years, “A Cure for Ellie” and the Kennedy Krieger Institute team up to host an international conference for patients and doctors interested in or affected by LBSL. Originally set for My 28-30 in Baltimore, Maryland, the 2020 in person conference titled “Conection, Collaboration, Cures” was changed to a virtual one in light of the COVID-19 global pandemic and took place November 14 – 16. Doctors and scientists from the nation’s top medical research centers present on a variety of topics, including mitochondrial cocktails, physical therapy, gene therapy, the latest scientific discoveries. Sixty-eight people from 13 countries and five continents took part. To view the recorded presentations click here.