News

One of our main goals at “A Cure for Ellie” is to spread awareness of LBSL. By doing so we hope to inform the general public, unite the global LBSL community and raise funds for research. Over the years, Ellie’s journey has been featured by a number of news outlets, most notably, the “Today Show with Kathie Lee and Hoda.” These are just a few of the dozens of appearances we have generated.

2020

• CBS Baltimore: Young Girl With Rare Brain Disorder Helps Raise $450K For Kennedy Krieger Institute

2019

2018

2017

2016

• DNA Science Blog: Before and After Gene Therapy (December 2016)
• Rare Disease Report: Treating Mitochondrial Dysfunction (October 2016)
• The Hill: Ex-Hill staffer raising money for daughter’s cure (October 2016)

2015/2013

• CBS Baltimore: Johns Hopkins Doctor Offers Hope To 5-Year-Old Girl With A Rare Disorder (September 2013)
• Johns Hopkins Medicine: Ellie teaches med students about mitochondrial disease (December 2015)
• Fox 5 DC:  Family using crowd sourcing to fund daughter’s cure (October 2015)
• Washington Post: Arlington 5-year old raising awareness of mitochondrial disease (September 2013)